Carer Resources

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Caring for someone with multiple sclerosis (MS) can be both rewarding and challenging. There are many resources available to help family carers manage their responsibilities, look after their own well-being, and access the support they need.

Key Resources for Family Carers

  • Regional MS Societies:
    • Each regional MS society has skilled Community Support Staff who provide one-on-one advice, arrange social groups, exercise classes, and support meetings, and can help you access further services and funding.
    • Regional societies also offer information and educational resources about MS and its management.
  • Carers NZ:

    • Carers NZ provides a national helpline, downloadable guides (including the Guide for Carers), and online resources to help carers navigate their role and access support services
    • Their website features practical advice, planning tools, and up-to-date information on financial help, respite care, and more.
  • Online Learning and Webinars:

    • MSNZ and regional societies offer webinars on topics such as newly diagnosed MS, fatigue management, relationships, and supporting children and whānau
    • These sessions provide practical tips and opportunities to connect with other carers.
  • Support Groups and Peer Networks:

    • Joining a carers’ support group or online community can provide emotional support, shared experiences, and practical advice
    • MSNZ and Carers NZ both offer platforms for carers to connect and share their stories.
  • Mental Health and Well-being Support

    • Helpline services are available for carers who need support, information, or help for themselves or their family members
    • If you are concerned about your mental well-being, your GP, local Māori health provider, or counselling service can offer support and referrals.
  • Practical Tools:

    • The Health Passport is a booklet that helps you and your loved one communicate with health professionals by recording symptoms and important information
    • MSNZ also provides MS Diagnosis Cards to help explain your loved one’s needs in public or emergency situations.

Friends & Whanau Resources

Supporting someone with multiple sclerosis (MS) is both rewarding and challenging. There are many resources available to help friends and whānau understand MS, offer meaningful support, and look after their own well-being.

Key Resources for Friends & Whanau

  • MSNZ Info Sheets and Guides

    • MSNZ Resources Downloadable information sheets and guides for supporting someone with MS, understanding symptoms, and managing everyday challenges.
  • Webinars and Online Learning

    • MSNZ Online Learning – Webinars and online sessions on topics like newly diagnosed MS, fatigue management, and supporting relationships.
  • Mental Health and Well-being Support

    • Mental Health Helpline (1737) – Free call or text 1737 for support, information, or help.
    • Your GP, local Māori health provider, or counselling service can also offer support and referrals.
  • Practical Tools:

    • Health Passport and MS Diagnosis Card – Tools to help communicate with health professionals and explain your loved one’s needs.

Downloadable Resources

How to Access Support

  • Contact Your Regional MS Society:

    • Your local MS society can provide personalised advice, connect you with support groups, and help you access funding and services
  • Call the Carers NZ Helpline:

    • For individual support and advice, call 0800 777 797 or visit the Carers NZ website.
  • Attend Webinars and Events:
 
  • Use Online Tools:
    • MSNZ Resources – Download the Health Passport and MS Diagnosis Card to help manage appointments and communicate your loved one’s needs

Resources for Supporters

  • MSNZ Info Sheets and Guides:

      • MSNZ offers a range of resources specifically for friends and whānau, including practical advice and strategies for supporting someone with MS.
  • Support Groups:
    • Joining a support group—either in person or online—can provide valuable advice and shared experiences from others in similar situations.
  • Webinars and Online Learning:

    • MSNZ and regional societies host webinars and events to help friends and whānau learn more about MS and how to provide effective support.

Why Carers NZ Matters

Family carers play a vital role in the lives of people with MS, often providing unpaid care and support for many years. Accessing resources and support helps carers manage their responsibilities, reduce stress, and maintain their own health and well-being.

Why Your Support Matters

Your support helps people with MS feel valued, understood, and less alone. By staying informed, being patient, and offering practical help, you can make a positive difference in their journey with MS.

Family Carers