MSNZ 2022 – A year in review
As we wind down for the holidays, at Multiple Sclerosis NZ, we have taken a moment to review what a year 2022 has been and celebrate our achievements. We continue to strive for our vision of ‘A world without MS’, breaking down barriers to treatments and access that exist for people with MS across the […]
MS Voice Newsletter July 2022
In our July edition of MS Voice we share the exciting plans for presenting the aHSCT petition to Parliament this month, webinars , plus Claire’s MS Story. You can also learn how to help us reach our fundraising goals by buying yourself an Entertainment Booklet, and as a bonus you will receive 2 months free! […]
Join us on the steps of Parliament to present the aHSCT petition!
Download a copy of the poster here: aHSCT Petition Presentation Public Invitation – 26th July 2022
My MS, My Story – Claire Brown
Fifty-six is reasonably old to be diagnosed with multiple sclerosis given that the average age of onset is around thirty-four years and I will always be grateful that, even in the unlikely event that I live to be 100, I will have spent most of my life blissfully free of this debilitating disease. Like most […]
Luis – My aHSCT Journey
Hello, my name is Luis and I’m from Portugal. I am a 51 year old, drummer and I have MS. I’ve been active all my life on bikes, racing, gym, etc. On February 1, 2016, I woke up with a very strong pain in my left leg. I couldn’t walk or stand I didn’t know […]
My aHSCT story – Lucy Kerly
Lucy Kerly had aHSCT on the NHS at Hammersmith Hospital in London at the beginning of 2022. Both she and her husband live with MS – Steve was diagnosed with relapsing MS in 2003 when he was 29 and travelled to Mexico for HSCT in 2016. Then, in 2020, Lucy found out she also had […]
My aHSCT Journey – Matthew Price
Matthew was living in Florida in 2004, a very stressful time with numerous hurricanes battering the area. He had also just been diagnosed with Multiple Sclerosis by a Neurologist. At 37 years old he was learning how to inject himself daily with Copaxone, for the rest of his life. During 2011 and 2012, Matthew tried […]
People with Multiple Sclerosis unable to access ‘life-changing treatment’ in NZ
Published in Stuff on 5th May 2022 https://www.stuff.co.nz/national/health/128482766/people-with-multiple-sclerosis-unable-to-access-lifechanging-treatment-in-nz
MS Voice Newsletter – March 2022
Our March edition of MS Voice gives you information on what happens to the immune system of people with MS after receiving aHSCT, plus Keryn’s aHSCT journey and we’re still working hard to achieve 10,000 signatures on the aHSCT petition, so please sign and encourage your friends and families to sign too. You can also […]
My aHSCT story – Keryn Ashworth
People often asked me ‘what research I did’ before deciding on a stem cell transplant in Russia…. Short answer ……’nothing’. I learnt that over the years of having this disease and my steady decline, that MS does not allow you the privilege of waiting and ‘see what happens’ scenario, so for me it was a […]