I was 26 years old when my world shifted. It was November 2024, and I’d started losing vision in my left eye. I had no idea it was the beginning of a diagnosis that would change everything.
The First Signs
My symptoms started with double vision and vision loss in my left eye, along with balance issues. Because I’d already been living with Type One Diabetes for five years, the medical team initially put my symptoms down to that. It took a few months to get some real answers – but I was thankful for the support I received during that time.
I was sent to the Ophthalmology department at Waikato Hospital, and it was there that they ordered an MRI. That scan led to my diagnosis: Relapsing Remitting Multiple Sclerosis.
It was a big shock. Frightening really. Losing my sight was scary, and the months that followed were really tough. My vision has recovered since then, but it will never be fully back to what it was. Strangely though, having already been through a life-changing diagnosis with diabetes helped me. I’d already learned that the body is unpredictable. I’d already learned to take one day at a time.
Learning to Cope
When I received my diagnosis, I didn’t know much about MS at all. Rather than overwhelming myself with information, I decided to take things at my own pace – learning gradually and working through everything as I could. I was incredibly grateful for my amazing family and friends during that time. Having a shoulder to cry on and being able to talk freely to someone you love, makes such a difference.
My family and friends showed up for me in so many ways – coming to infusion appointments, taking the time to learn about MS, and just being there to listen. It has made me feel an even deeper love for the people around me. I honestly couldn’t have done it without them.
“It’s okay to be sad in the beginning. This is a big life change. Things will get better.”
Finding My People
One of the unexpected gifts of this journey has been the people I’ve met. Having two chronic illnesses has definitely changed my life, but not only in hard ways. I joined an MS walking group, and together with Liz from the local MS team, I helped build a monthly social evening for people living with MS in Waikato. We’ve been out for dinners, pub quizzes, and bowling – those connections have turned into real friendships.
Having people around you who are going through the same thing, people who listen and tell you it’s going to be okay, makes such a difference. At first, everything felt overwhelming. But meeting others made it so much easier to accept. A special thank you to Liz, who has been absolutely amazing throughout my journey. I’ve also gained wonderful friends through Diabetes Youth Waikato.
I’d say to anyone newly diagnosed: please connect with your local MS team. It is so helpful, especially at the beginning.
My Treatment
I’m currently on Natalizumab, which I receive as a six-weekly infusion. So far, things are going well – my experience has been really positive. The nurses at the infusion centre are fantastic, and I’m grateful for the treatments that exist today. I haven’t had any relapses yet, although I know I’m still at the beginning of my journey.
Adjusting My Daily Life
MS has made me take a step back and reflect on my life. Fatigue is my biggest challenge – I’ve had to put things in place to pace myself throughout the day, building in rest and breaks that I didn’t used to need. I had a very busy life when I was diagnosed, so I made the decision to put my study on hold and focus on work and the things that make me happy.
I adjust each day based on how my body is feeling. I’m lucky to have a supportive fiancé and family who understand that. I’ve read the Overcoming Multiple Sclerosis Handbook and made some small but meaningful changes. I enjoy walking, but I believe in balance, so I enjoy chocolate too.
On the hard days, I reach out to family and friends, practice breathing exercises and meditation, and lean on MS Waikato when I need extra support. I also try to maintain a good sleep routine and make time for the hobbies that bring me joy.
Staying Connected & Informed
I follow a lot of MS societies on social media, and I find the stories shared by others living with MS genuinely inspirational. Seeing what people are doing and how they’re living has been a real source of strength for me. It’s also why I’ve started posting about my own experience – I want to help educate others and create connections online for people who might be where I was not so long ago.
My Tips for Living Well with MS
- Don’t be too hard on yourself. Some days may feel hard, but things will be okay.
- Take one day at a time. I’ve learned through my diabetes that the body is never fully predictable – some days just don’t follow the book.
- Focus on balance – exercise, food, rest, and listening to how your body feels.
- Advocate for yourself. Whether it’s an appointment or an MRI, speak up about what you need.
- Connect with your local MS community – especially early on, it makes all the difference.
- Be kind to yourself. It’s okay to be sad. This is a big life change, and things will get better.
Looking Ahead
I run a business called Slice and Stitch – a fashionable diabetes accessory brand that sells pump belts, cosmetic bags, and CGM patches. In the future, I hope to create MS products too and share them with the community. I plan to keep volunteering in both the MS and diabetes space, because giving back to the people who have given so much to me feels important.
One year & five months on from my diagnosis, I feel grateful. For the treatments available. For the awareness being raised. For every person who showed up for me. MS and Type One Diabetes are part of who I am now – not limitations, but part of my story.
“Things will get better. You just have to let yourself get there, one day at a time.” – Hollie
Last Updated May 14, 2026