This September, MS New Zealand is launching something special for MS Awareness Week, and we want you to be part of it.
This is year 3 of our “Time Matters in MS” campaign. Early understanding, early support, and early action can make a real difference to brain health and quality of life for people living with multiple sclerosis. To bring that message to life, we’re building a campaign centred on real faces and real experiences: with the “MS Looks Like Me” digital photo wall and a video series about MS symptoms.
MS Looks Like Me: A Digital Photo Wall
We’re creating a digital space where people living with MS can share a photo, their name, and a short statement about their journey. It might be about your diagnosis experience, your first symptoms, or any other moment that’s meaningful to your story.
We’d love the wall to launch in September already filled with photos and stories, and we’re looking for people willing to be among the first to feature on it.
A New Symptom Awareness Experience
Alongside the photo wall, we’re developing an educational experience that highlights some of the common early symptoms of MS, combining visual and audio elements. At the end of each section, we hope to feature short videos of people sharing their personal experience of a particular symptom, helping others recognise and understand what those early signs can look and feel like.
These videos are designed to be simple and low-pressure: just you, speaking in your own words, filmed on your phone or laptop in a quiet, well-lit space. No special equipment, scripts, or production experience required.
How You Can Get Involved
We’re looking for people living with MS who’d like to:
- Share a photo of themselves for the MS Looks Like Me wall
- Record a short video talking about symptom(s) or part of their experience
- Use their voice to help others better understand what MS can look like
You’re welcome to take part in one of these, both, or simply get in touch to find out more before deciding.
Why It Matters
Every story shared helps raise awareness, break down misconceptions, and reinforce why time matters when it comes to MS. The more real experiences we can show, the more people will recognise the early signs in themselves or someone they love, and the sooner they can seek support.
MS looks different for everyone, and every story matters. Together, we can make MS more visible, more understood, and ensure no one faces it alone.
Interested in taking part? Get in touch with us today to learn more about either opportunity.
Last Updated June 24, 2026