Advocacy

Actively Advocating

Multiple Sclerosis New Zealand’s mission is to work with member organisations to meet the needs of people with Multiple Sclerosis, their families and carers through national leadership, advocacy, communication, and national and international collaboration.

MSNZ strives to achieve advocacy successes through 3 pathways:

  • Systemic advocacy: National advocacy to improve the lives of people with Multiple Sclerosis in New Zealand
  • Collaborative advocacy: Working with other organisations and health professionals on common issues
  • Awareness raising: Working to raise awareness nationally for MS as a chronic condition affecting New Zealanders and highlighting the needs of those living with the condition

If you require advocacy support for your unique situation you can contact your Regional Community Support Staff who can provide individual support. Find and contact your Regional MS Society here.

 

We would love to hear from you via our online contact form if you would like to:

  • know more about MSNZs advocacy work
  • share your story about how any of these issues impact you
  • tell us how MSNZs advocacy has had a positive impact on your life
  • highlight an issue MSNZ should be aware of
  • contribute in any way to our advocacy work

 

 

2021 Areas of Advocacy

Multiple Sclerosis NZ:

  • supports Kiwis affected by Multiple Sclerosis by providing national leadership in advocacy, awareness, information and education;
  • helps builds capacity for our 18 regional member organisations by providing nationally consistent, relevant, and evidence-based resources; and
  • work to break down barriers to treatment and care for people living with MS.

MSNZs advocacy is driven by the expressed needs and concerns of those living with MS. While we would like to advocate for all issues affecting people with MS in NZ, the small advocacy team annually chose the key issues where we feel we can make positive and meaningful impact and have the best possible chance of success within our resources.

Our Advocacy Programme is currently focused on:                                                         

  • Advocating for increased resourcing for neurological services to improve access to diagnosis, treatment and on-going care.
  • Improving the understanding of the costs of MS to the NZ economy, those diagnosed, and their families.
  • Funding for treatments in early stages of MS in line with McDonald Criteria 2017.
  • Funding for treatments which have shown benefits for Secondary Progressive MS (SPMS) and Primary Progressive MS (PPMS).
  • Ensuring people with MS are informed about Covid-19 and MS as well as ensuring the needs of the MS Community are addressed by relevant agencies.
  • Funded and legal access to medicinal cannabis for people with MS.
  • Ensuring Autologous Haematopoietic Stem Cell Transplant (AHSCT) is available and funded in NZ for those who would benefit.
  • Pushing for an Independent review of PHARMAC and increased PHARMAC budget to fund life improving and saving medicines.
  • Calling for improvements in access to both relief care and long-term residential care for under 65’s with MS.
  • Working with the Carers Alliance to improve funding and support for NZ Carers.

MORE ABOUT MS

Multiple Sclerosis Logo About MSNZ
Who we are and what we do?

MSNZ is a non-profit organisation formed to support people with MS in NZ

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Your local Society
Contact specialist MS Community Support Staff

To find out about the supports and services available to you in your area

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