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Resources

MS affects a wide variety of people in different circumstances. Those providing support often need advice and information to help those they care for living with MS. The below are curated resources that may be of assistance to those looking for information. Anyone providing support to people living with MS is welcome to also contact their Regional MS Society for further information and advice.

 

 

Parents

Childhood MS A Guide for Parents – MSIF (International Federation)

Kids Get MS Too, A guide for parents with a child or teen with MS – National MS Society (USA)

Mythbuster: I have MS therefore my kids will get MS  – video – MSIF (International Federation)

Newly Diagnosed webinar series – MS Auckland

Raising a child with a rare disorder – Rare Disorders New Zealand

 

 

Children

Kid’s Guide to MS – Multiple Sclerosis Trust (UK)

Our Dad makes the best boats – Multiple Sclerosis Society (UK)

Our Mum makes the best cakes – Multiple Sclerosis Society (UK)

Has your Mum or Dad got MS? – MS Australia (Australia)

You See, I See: Helping Kids Learn About MS – MS LifeLines®

Understanding Multiple Sclerosis – Written by Doctors, for kids – MS Australia

MS Xplained – A guide for 14 year olds – MS Australia

Keep S’mylein – An activity book to help parents and children learn and talk about MS together – National MS Society (USA)

Someone You Know Has MS  – National Multiple Sclerosis Society

Annie & Dan Talk About MS – Part 1 – Introducing MS – MS Society (UK)

Annie & Dan Talk About MS – Part 2 – What Happens in MS? – MS Society (UK)

Annie & Dan Talk About MS – Part 3 – Having a Relapse – MS Society (UK)

My MS Superhero drawing and colouring-in sheets – MSNZ

My MS Superhero Activity Book – A5 – MSNZ

My MS Superhero Activity Book – A4 – MSNZ

 

Students

Your Education Rights as a Student with Multiple Sclerosis – National Multiple Sclerosis Society (USA)

Someone You Know Has MS – National Multiple Sclerosis Society

 

Teenagers

When a Parent has MS, a teenagers guide – National Multiple Sclerosis Society (USA)

Kids Get MS Too, A guide for parents with a child or teen with MS – (USA)

Kids get MS Too – Video – MSIF / National MS Society (USA)

Newly Diagnosed webinar series – MS Auckland

Someone You Know Has MS – National Multiple Sclerosis Society

 

Families

Plaintalk: a booklet about MS for Families – National Multiple Sclerosis Society (USA)

Supporting someone with MS, a guide for family and carers – MS Society (UK)

Family Matters: an information series that offers useful guidelines so that family members and friends can understand the challenges they may face and the strategies that they can adopt to manage better – MS Connect (Australia)

MS Momentum – A bi-monthly podcast from Valerie Wilson of MS Otago.

Whānau & MS webinar – MS Auckland

Fatigue Management webinar – MS Auckland

Newly Diagnosed webinar series – MS Auckland

Relationships & MS webinar – MS Auckland

Bladder-and-Bowel-Booklet-MS UK – MS-UK

Someone You Know Has MS – National Multiple Sclerosis Society

 

Carers

A Guide for Carers – Ministry of Social Development (NZ)

CarersNet – (NZ)

A Guide for Caregivers – National Multiple Sclerosis Society (USA)

MS in your life, a guide for young carers – Multiple Sclerosis Society (UK)

Supporting someone with MS, a guide for family and carers – MS Society (UK)

Guide for MS Caregiver – MSIF adapted from MSSI (India)

Living well with MS as you grow older – MSIF

 

Health Professionals

GP Guide for Relapse Management – (NZ)

Brain health in multiple sclerosis – A nursing resource – (International)

Multiple Sclerosis Relapse Management – (NZ)

Helping you explain MS: a teaching resource for healthcare professionals – Multiple Sclerosis Society – (UK)

Multiple Sclerosis, the quick guide for  hospitals, residential homes and nursing homes – Multiple Sclerosis Society (UK)

Physicians Professional Resource Center For Healthcare Professionals – Physicians – National MS Society (USA)

Professional Resource Center For Healthcare Professionals – Nurses – National MS Society (USA)

Professional Resource Center For Healthcare Professionals – Mental Health Professional – National MS Society (USA)

Professional Resource Center For Healthcare Professionals – Rehabilitation Professional – National MS Society (USA)

Multiple Sclerosis in Adults: Management – NICE – Guidelines (UK)

Multiple Sclerosis – NICE – Quality Standards (UK)

 

 

Employers

Guide for Employers – MS Australia (Australia)

Employing People with MS – MS Australia (Australia)

The Definitive Guide to Inclusion in the Workplace – ThanksBen.com

Diversity in the workplace – Novoresume.com

Employment Law Webinar – Multiple Sclerosis Auckland with Alison Maelzer

 

Teachers

Students with MS and the Academic Setting, a Handbook for School Personnel – National Multiple Sclerosis Society (USA)

 

General

MS Explained – Multiple Sclerosis Trust

Brain Health for people with MS – MS Brain Health

Your first of 7 steps for Overcoming MS – Overcoming MS

Recognising a Relapse – Auckland District Health Board

MS Prognosis and Life Expectancy – Multiple Sclerosis News Today

Living well with MS as you grow older – MSIF

Employment Law Webinar – Multiple Sclerosis Auckland with Alison Maelzer

Exercise and Keeping Active with MS – Multiple Sclerosis Auckland with Gilly Davy

Preparing for Your Neurologist Appointment – MS Plus

Self-management and self-management support – Healthify – He Puna Waiora

Maintaining Optimal Bladder Health in MS Webinar – MSNZ with Daniela Aldabe of University of Otago

Wellness toolkit – Healthify – He Puna Waiora

Health and Disability passport – Health & Disability Commissioner

 

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