Code of Rights when using a health or disability service.
When you use a health or disability service in Aotearoa New Zealand, you have the protection of the Code of Rights. It’s important that everyone knows their rights so they can ask questions, seek support, and ensure their voices are heard. The Health and Disability Commissioner has produced an animated video to explain your rights […]
Mavenclad® Cladribine – Have your Say by Friday 22nd September 2023
Mavenclad® Cladribine – Have your Say MSNZ is currently preparing a submission to Pharmac to urge them to again consider funding Mavenclad (Cladribine) for Relapsing Remitting MS. Our submission is due this Friday 22nd September. Real world and clinical trial data shows the treatment benefits for those with Relapsing Remitting MS. It is also available […]
MS Voice September 2023 – Awareness Week Special Edition
Welcome to our Awareness Week 2023 special edition of MS Voice where we introduce you to some of the many faces of MS, including Liz, Prue, Tanya and Bryce. Join us whilst these remarkable, inspiring people take us on a journey to see what life is like with MS, for them. Everyone’s journey is different […]
Ocrevus for PPMS – Your Questions Answered
Here’s what you need to know about Ocrevus (ocrelizumab) for Primary Progressive MS. Download PDF copy here: PPMS Ocrevus FAQ – 13 September 2023. What medicines are available to treat Primary Progressive Multiple Sclerosis (PPMS)? There is only one medicine, Ocrevus® (ocrelizumab), that has been approved by Medsafe to treat primary progressive MS […]
The best of life with Prue Young
Featured in M2 Woman – written by Andre Rowell: https://www.m2woman.com/the-best-of-life/ As a heli medic, she is no stranger to high stakes, rapid decisions, and life-saving efforts. Yet, while her career itself demands an extreme level of commitment, Prue’s personal life is no less challenging or thrilling. In addition to her demanding profession, she is an […]
Liz Gasson on living life with MS
Featured in Woman magazine: https://womanmagazine.co.nz/multiple-sclerosis-awareness-week-liz-gasson-on-living-life-with-ms/ Liz Gasson and her cycling coach Steve Bale are fresh off a plane when their faces pop into the zoom call, having just arrived at their accommodation in Salt Lake City. This is the third time this year the pair have travelled around the world, working towards qualifying for the […]
My MS Superhero – MS Awareness Week 2023
This MS Awareness Week we are continuing with our ‘Face of MS’ campaign and have a number of new faces to introduce you to. Please take a moment to read their encouraging, inspiring and personal stories here. We often hear how children are impacted by MS, whether through their parents diagnosis, aunt, uncle, grandparent or […]
Media Release: “Relief” over Pharmac Decision to Fund First-Ever Treatment for Debilitating Form of Multiple Sclerosis
A seven year battle on behalf of hundreds of people living with the most debilitating form of Multiple Sclerosis has been won – with Pharmac agreeing to fund Aotearoa New Zealand’s first ever treatment for the disease variant from October 1st. Multiple Sclerosis New Zealand (MSNZ) says the decision to fund Ocrelizumab is hugely positive […]
MS Voice August 2023
Welcome to the August edition of MS Voice where our focus is on carers. We are thrilled that the Carers Alliance ‘We Care‘ website is now live, and encourage you to review the information on offer. Once you are up to date with all the ways you can help, why not share the request on […]