Carers Alliance meet with Louise Upston
Last month, Carers NZ and the Carers Alliance met with Louise Upston in her roles as Disability Issues Minister, and Minister for MSD. They had a frank chat with the Minister, and presented documentation with ‘quick win’ asks, which could easily be immediately implemented. From using positive language about carers and caring, to releasing Carer […]
Immediate changes to Disability Support Funding – Have your say
Yesterday, 18 March, Whaikaha, Ministry of Disabled People announced immediate changes to disability support funding purchasing rules. These rule changes impact those on: Carers Support (CS) Individualised Funding (IF) Enhanced Individualised Funding (EIF) Choices in Community Living Enabling Good Lives (EGL) personal budgets. These changes remove much of the flexibility of funding which has been […]
‘Exhaustion and dread’ : Desperate carer calls for change
Speaking in support of the Carers Alliance petition, Maxine Hall, a carer for her husband with Multiple Sclerosis, speaks of her struggles and hopes that this campaign will at least raise awareness. View original article on Otago Daily Times: https://www.odt.co.nz/news/dunedin/exhaustion-and-dread-desperate-carer-calls-change A Mosgiel caregiver desperate for a break after averaging fewer than four days off […]
Media Release: Nationwide petition launched to fight “shocking” lack of fair support for carers
Media Release: Friday 5th June 2023 A powerful Alliance representing 56 national not-for-profits is demanding the Government stop “dragging its feet” to provide long overdue recognition and basic rights for the estimated one million largely unpaid New Zealanders struggling to care for whānau and loved ones. The Carers Alliance is now taking its fight to […]
Recognizing and Supporting the Challenges Faced by New Zealand’s Family, Whānau, and Āiga Carers
Carers play a crucial role in our society, providing essential support and care for their loved ones. However, their invaluable contributions often go unrecognized and unacknowledged. The Carers Alliance of New Zealand is taking a stand and advocating for the establishment of a Minister or Commissioner for family carers, as well as the development of […]
MS Voice Newsletter – May 2023
Welcome to the May edition of the MS Voice Newsletter! Your trusted source for the latest updates, inspiring stories, and valuable resources in the world of Multiple Sclerosis. We are excited to bring you another month of insightful content that aims to empower, educate, and connect individuals affected by MS. In this edition, we delve […]
aHSCT petition delivered to Parliament – watch the video
Such an exciting day yesterday when we were able to witness Joan Perry’s aHSCT petition, with over 10,000 signatures, being received by ACT deputy leader Brooke van Velden on the steps of Parliament. It was then presented to Parliament later in the afternoon. Watch the exciting moment here: https://youtu.be/rEDa7MN2C74
aHSCT in the news: We’re fed up waiting for it to be made available here
A 10,000-strong petition asking Health New Zealand to extend “game-changing” stem cell treatment to multiple sclerosis (MS) patients is set to be delivered to Parliament. The petition started by Aucklander Joan Perry, whose daughter Anne Besley has MS, calls for autologous haematopoietic stem cell transplantation (aHSCT) to be made available for selected patients in New Zealand. Doctors […]
Media Release: Government urged to “get a move on” and approve cost-effective, proven, stem cell treatment for Multiple Sclerosis
Tuesday 26th July 2022 A private petition is being delivered to the steps of parliament at lunchtime today – calling for the government to green-light a treatment, readily available overseas, which is delivering remarkable improvements to the health of many patients with multiple sclerosis (MS) worldwide.The petition is the work of patients and their families, […]
Join us on the steps of Parliament to present the aHSCT petition!
Download a copy of the poster here: aHSCT Petition Presentation Public Invitation – 26th July 2022