MS: Busting the Myths
September 4, 2023 | Advocacy, Media, Progressive, Treatments
A seven year battle on behalf of hundreds of people living with the most debilitating form of Multiple Sclerosis has been won – with Pharmac agreeing to fund Aotearoa New Zealand’s first ever treatment for the disease variant from October […]
June 26, 2023 | Media, Progressive
Te Pātaka Whaioranga – Pharmac has started a consultation today for widening access for two treatments; ocrelizumab (branded as Ocrevus) as the first funded treatment for primary progressive multiple sclerosis, and emicizumab (branded as Hemlibra) for the treatment of all […]
September 14, 2022 | Advocacy, Progressive, Treatments
Currently, only approximately 1900 of the over 4130 New Zealanders diagnosed with MS are able to access funded Disease Modifying Therapies (DMTs). In particular, those with progressive forms of MS, Secondary (SPMS) and Primary Progressive MS (PPMS), have extremely limited […]
July 26, 2022 | Advocacy, Life with MS, Media, Treatments
A 10,000-strong petition asking Health New Zealand to extend “game-changing” stem cell treatment to multiple sclerosis (MS) patients is set to be delivered to Parliament. The petition started by Aucklander Joan Perry, whose daughter Anne Besley has MS, calls for autologous haematopoietic […]
July 26, 2022 | Advocacy, Life with MS, Media, Treatments
Listen how Bronwyn struggled with every day life, couldn’t look after her children or hold a book, and how it led her to raise $100,000 and head to Mexico for life changing treatment, aHSCT. The interview was aired this morning […]