MS: Busting the Myths
May 30, 2024 | Advocacy, Treatments
At MSNZ we would like to understand more about patient experiences with infusion treatments. The first line Disease Modifying Treatment (DMT) options we have been successful in advocating for in NZ are considered some of the best in the world. […]
April 30, 2024 | Advocacy, Funding, Life with MS
On Monday 18 March 2024, Whaikaha – Ministry of Disabled People, announced changes to the purchasing rules for Carer Support, Individualised Funding, Enhanced Individualised Funding, personal budgets, and Choices in Community Living. On 24 April, following significant feedback from the […]
April 29, 2024 | Advocacy, Aids, Funding, Life with MS, My Story
Sativex, or Cannabidiol with tetrahydrocannabinol, is an add-on treatment approved by Medsafe for symptom improvement in patients with moderate to severe spasticity due to multiple sclerosis (MS). It is indicated for people who have not responded adequately to other anti-spasticity […]
March 19, 2024 | Funding, Petition, Uncategorised
Yesterday, 18 March, Whaikaha, Ministry of Disabled People announced immediate changes to disability support funding purchasing rules. These rule changes impact those on: Carers Support (CS) Individualised Funding (IF) Enhanced Individualised Funding (EIF) Choices in Community Living Enabling Good Lives […]
February 29, 2024 | Advocacy, Treatments
Pharmac announced, in February, it was looking to extend funded access to Shingrix, the new vaccination for shingles, to immunocompromised people over 18 years old. However, the proposal listed specific treatments and conditions eligible. While we were pleased to see […]