MS: Busting the Myths
May 29, 2024 | Life with MS, News, Progressive, Treatments
On Wednesday 15 May, Multiple Sclerosis NZ raised how critical workforce shortages are impacting patients with Primary Progressive MS (PPMS) access to time sensitive disease modifying therapies. A business case prepared by clinical specialists had been under review for five […]
January 31, 2024 | Education, Life with MS, Progressive, Support, Symptoms, Training, Treatments
We are thrilled to share with you our newest resources. Our Living Well with MS (LWWMS) booklet will provide you with a good overview of what multiple sclerosis is, what causes it, how it is diagnosed, the symptoms and treatment […]
September 4, 2023 | Advocacy, Media, Progressive, Treatments
A seven year battle on behalf of hundreds of people living with the most debilitating form of Multiple Sclerosis has been won – with Pharmac agreeing to fund Aotearoa New Zealand’s first ever treatment for the disease variant from October […]
June 26, 2023 | Media, Progressive
Te Pātaka Whaioranga – Pharmac has started a consultation today for widening access for two treatments; ocrelizumab (branded as Ocrevus) as the first funded treatment for primary progressive multiple sclerosis, and emicizumab (branded as Hemlibra) for the treatment of all […]
June 26, 2023 | Advocacy, Carer, Carers, Life with MS, Media, Petition, Progressive, Uncategorised
Speaking in support of the Carers Alliance petition, Maxine Hall, a carer for her husband with Multiple Sclerosis, speaks of her struggles and hopes that this campaign will at least raise awareness. View original article on Otago Daily Times: https://www.odt.co.nz/news/dunedin/exhaustion-and-dread-desperate-carer-calls-change […]