Latest News

Second State of Caring Survey Out Now

March 27, 2024 | Advocacy, Carer, Life with MS, Petition, Survey

In 2020-21 more than 1,600 family carers completed the first State of Caring survey. The Carers Alliance are repeating this survey every two years to understand how family carers are doing: their wellbeing, what help they get, what help they […]


What if your experience of living with MS helped thousands of people?

November 9, 2023 | Study

The survey, from PROMS, aims to understand the symptoms experienced by people living with MS and which ones have the greatest impact on their lives. It was developed in collaboration with an expert research team as well as people affected by MS, who played a […]


Calling all people with Secondary Progressive MS

July 26, 2022 | Life with MS, Progressive, Research

Multiple Sclerosis NZ is currently in the process of providing information to Pharmac regarding the high unmet need of those with Secondary Progressive MS. A new treatment, Siponimod (Mayzent), is currently under review and due to be assessed by PTAC […]


The COVID-19 Pandemic Experience in Multiple Sclerosis: The Good, the Bad and the Neutral

May 18, 2021 | Covid-19, Research

The COVID-19 pandemic has had at least some level of impact on everyone as restrictions have been enforced globally. Restrictions can potentially impact many aspects of life, including finances, social and family relationships, travel, access to healthcare and leisure activities, […]


Can you spare 10 minutes to help us capture the impact of the MS Brain Health initiative?

November 25, 2020 | Research

MS Brain Health are running a survey to capture the value of their work on individuals in developing their approach to MS care – both in terms of personal impact and the wider health and care environment. If you are […]