MS Voice Newsletter – February 2025
Welcome to the February edition of MS Voice—your trusted source for the latest news, updates, and real-life stories from Multiple Sclerosis New Zealand and the MS community. This year promises to be a dynamic one as we continue our commitment to educating, campaigning, and advocating for all those impacted by Multiple Sclerosis. Our focus is clear: […]
Help Shape the Future of Disability Funding
Consultation is underway across the country to help shape future disability funding and service models. This is your opportunity to have your say and we encourage you to do so, now more than ever. Note: This consultation is for people who receive essential disability support after an assessment from a NASC or EGL site. This […]
Second State of Caring Survey Out Now
In 2020-21 more than 1,600 family carers completed the first State of Caring survey. The Carers Alliance are repeating this survey every two years to understand how family carers are doing: their wellbeing, what help they get, what help they need, and their concerns. Since the first survey we’ve experienced COVID-19, flooding in some areas, […]
What if your experience of living with MS helped thousands of people?
The survey, from PROMS, aims to understand the symptoms experienced by people living with MS and which ones have the greatest impact on their lives. It was developed in collaboration with an expert research team as well as people affected by MS, who played a crucial and active role in the process. After the survey, the anonymised and aggregated results will help […]
Calling all people with Secondary Progressive MS
Multiple Sclerosis NZ is currently in the process of providing information to Pharmac regarding the high unmet need of those with Secondary Progressive MS. A new treatment, Siponimod (Mayzent), is currently under review and due to be assessed by PTAC in August. Siponimod has been shown to have benefits for those with Secondary Progressive MS. […]
The COVID-19 Pandemic Experience in Multiple Sclerosis: The Good, the Bad and the Neutral
The COVID-19 pandemic has had at least some level of impact on everyone as restrictions have been enforced globally. Restrictions can potentially impact many aspects of life, including finances, social and family relationships, travel, access to healthcare and leisure activities, amongst others. As a result, an increased level of mental health concerns have been observed […]
Can you spare 10 minutes to help us capture the impact of the MS Brain Health initiative?
MS Brain Health are running a survey to capture the value of their work on individuals in developing their approach to MS care – both in terms of personal impact and the wider health and care environment. If you are aware of the project and feel it has had an impact on MS care, then […]
Let’s celebrate our MS support networks!
Let’s celebrate our MS support networks! We are collecting stories for World MS Day 2021. The ongoing pandemic has made life with MS difficult for many. Despite the circumstances, the global MS movement continues to share powerful stories of hope and connection. We want to showcase the MS support networks that have created shared moments […]